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Guidelines for interaction on National MS Society social media



National MS Society social media pages, profiles, presences and communities are intended to be safe places for people affected by multiple sclerosis and those who care about them to engage in respectful conversations that honor each person’s experiences and beliefs.


The Society does not censor or police personal ideas or experiences shared on our social media, but does its best to keep behavior within clearly stated Guidelines. We reserve the right to remove questionable comments including (but not limited to) anything that:

  • infringes on legal rights of content ownership, or otherwise indicates participation in, suggestion or encouragement of any illegal activity,
  • promotes or sells vitamins/drugs/healthcare products or services,
  • promotes false or unproven claims about MS and/or products/services related to treatment of MS,
  • makes a false accusation of the Society,
  • is unsolicited bulk or repeat messages (spam or flooding),
  • is hateful, threatening, or pornographic; incites violence,
  • becomes argumentative in nature,
  • is a personal attack (including but not limited to instigation, accusation, bullying, intimidation, harassment),
  • violates Facebook’s or any social platform’s Statement of Rights and Responsibilities.

If behavior falls outside of the accepted Guidelines, individuals will be permanently banned / removed from our social media at our discretion.


Our Facebook pages, like other public online forums, shouldn't require constant moderation given responsible participation. Please handle personal issues through personal messages, or use Facebook’s tools to Block that individual. Violations of Facebook's Statement of Rights and Responsibilities should be reported to Facebook through their Flag and Report tools. If you receive unsolicited or unwelcome private Messages through a Society Facebook, please use Facebook’s tools to Report and Block the user. If would like to report the message to the Society, please copy and paste the entire text of the message into an email and send to


As a reminder, your activity on social media is public – regardless of your privacy settings or our page settings, your activity on our Facebook, Twitter, YouTube, etc. is visible to all (and likely searchable on Google) – whether or not the user is your Facebook Friend, Twitter Follower, YouTube Subscriber, etc. By sharing information or content on social media, you are forfeiting your right to privacy. Please protect yourself. Never share your street address, social security number, birth date or other personal information that could be used to impersonate you.


User references, posts and comments made on social media are not endorsed or recommended by the National MS Society. We are not responsible for any user or "off‐site" information referenced by or linked to from social media. Refer to our Legal Notice for further details and please carefully research all shared opinions and advice through expert sources and consultation of your healthcare team.

By choosing to participate in National MS Society-governed social media and online communities, you are agreeing that the Society can contact you directly in response to any posts or content that suggests risk to self and/or others. The Society reserves the right to contact you in the event that “at risk” statements or content occur.

As it’s impossible for us to respond on a regular basis to individual postings on our social media, please check our website for updates or questions about breaking or evolving MS news. Thanks for your continued support of the MS movement!


© 2024 The National Multiple Sclerosis Society is a tax exempt 501(c)3 nonprofit organization. Its Identification Number (EIN) is 13-5661935.